Month: December 2017

The worst things about living with “Chronic illness.”

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At times it’s very hard to look towards the future because of my “chronic illness.  I don’t know how my health is going to be tomorrow or even just five years from now. Three years has already gone by since I was first diagnosed with my first autoimmune disease and so much has happened. My friends and family know that I am sick but most don’t know the struggles that I live with every single day. Everyday  I fight a chronic illness, and every single day I live in some sort of pain related crisis with at least one of my illnessess. I have a hard time living beyond what I can do today.

I have become used to the name chronic illness, I am almost immune to it but if I really think about, it’s too much to process when facing “Chronic illness,” because that means forever, instead I try to live day to day.

Most of my friends and family don’t know that most of my days consist of two to three doctor appointments with one of my many specialist or my primary. I also have a hand full of medication in the morning, a couple in the afternoon, and another handful at night and I will always have to take these pills. Some of my medication is necessary just to survive and missing one isn’t an option..

“Medication can take three to six months to start working…even though I will still have pain, and sometimes I think it’s not working until I stop taking it and find out it was working.

“The financial and emotional burden on my family is heavy. I feel guilty most days because I can not work and contribute to my family. If I could work and give my fair share things would be easier for all of us. Not being able to give my family the security of what’s going to happen next week… or even tomorrow takes a toll on all of us, especially my children.

“The hardest part of living in this nightmare is functioning in an unfuctionable body from lack of sleep due to pain… Most nights I wake up for hours and go back to bed after giving in the pain medicine. I wake up exhausted.

Even with all of this, I keep a positive attitude and I am thankful every single day that I get.

What things make living with autoimmune the worst for you?

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Please Share if this was of any value to you.

 

Monday morning pick me up. ( Good News!)

Good News!
Luke 2: 10-11
“And the angel said to them, “Fear not, for behold, I bring you good news of great joy that will be for all the people. For unto you is born this day in the city of David a Savior, who is Christ the Lord.”
I have good news for you today. Today, we celebrate the birth of the Savior but that is just the beginning, this Savior is available to you and me every day. He has the gift of life, He has the power to defend, He is the one that holds our hand and sees us through every situation and predicament that we face today. He will comfort when we are sad, He will rejoice with us when we rejoice. He is the perfect gift, the perfect companion, a perfect Savior.

Merry Christmas!

I wanted to take the time to wish all of my followers, readers, and anyone that sees my posts a Merry Christmas! 

My fellow Spoonies: remember to conserve your spoons,( energy) , do more sitting than doing, take advantage of all the family in your house this year and allow them to help. Your body will thank you on Tuesday! 

An encouraging letter to everyone who has Autoimmune disease.

For those in the world who suffer with the debilitating disease such as Lupus, I pray for strength, for mercy, for healing. Having someone so close to me that suffers with this disease is not easy. Day after day, she suffers what seems to be alone, although I know she is never alone, God is with her, I believe in her, and I pray for her continually.  This disease has been harder than so many diseases because you can’t see the effects of this disease, she looks like the person I have known for almost nine years, but silently she suffers immensely. So, I stand by her, I listen, I pray and I try to encourage her every day.
For the community of those who are suffering with Lupus and Connective Tissue Disorder, I pray for a cure, I pray for God’s healing and I want to say to you, I stand in the gap with you. I pray that the people in your life will not show pity but strength, love and encouragement. I pray that your spouses will get a clue and be supportive, understand what you are going through, be caring and always be a shoulder to lean on. I pray that your children will be a helping hand, and that they will inspire you and take some of the weight off your shoulders by helping out the best they possibly can.
I offer this word of encouragement to so many that suffer with these autoimmune diseases, stand with each other, encourage one another. Amos 3: 3 in the Bible says, “Can two people walk together without agreeing on a direction? Coming together and supporting one another and offer sound advice is a key component of healing. If you have found some practical things that have helped you, share it. If you have learned a few things from reading and studying these diseases that will help someone else spread the wealth. If your doctor has been successful in helping in any way, let people know. There is strength in numbers. Lastly, “God has not given us the spirit of fear but of power, love and a sound mind.” (2 Timothy 1: 7 NKJV). Power to rise above, love is the strongest medicine, and a sound mind is for those dark hours when things seem hopeless or when someone else needs a word to keep them going. Proverbs 16: 24 says, “Gracious words are like a honeycomb, sweetness to the soul and health to the body.”
Blessings,
Pastor Johnie

 

Tips for gaining control over Fear & Anxiety.

via Tips for gaining control over Fear & Anxiety.

Thanksgiving.

via Thanksgiving.

Much-Afraid.

I used to be afraid of everything, so much that my mentor called me “Much Afraid.” After a lifetime of horrible things that I could not control, it’s no wonder that I was afraid of things that I could not control as I became an adult. 

I doubted

I worried constantly about things that were completely out of my control. I lived inside of an irrational fear, that created anxiety inside of me; to live inside of my head was torture. I was constantly afraid of losing people who I invested in, I doubted others love for me, I was afraid of every what if you could imagine.

Thank God

Anxiety seemed to always linger around and when real life things would come, I couldn’t control it.  It kept me from moving forward and growing for a long while. I worked really hard to change my mindset and come out of that stronghold, and thank God I did because I do not think I could handle all of my illnesses now with that state of mind back then.

It’s ok.

I think it’s ok to feel afraid and even have anxiety as long as it’s not controlling your mind, your will, and emotions.

You have a friend.

No matter what anyone says you can’t just snap out of anxiety, it does take a lot of work, and perseverance. You are battling your mind after all. Tackle it one day at a time. If you are having anxiety know that I am here and I will support you.

There was a famous line used in the inaugural address of Franklin D. Roosevelt that I live by. “There is nothing to fear but fear itself.”

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Monday Encouragement.

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Short encourgement for today.

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#health #chronicillness # remainstrong

Autopilot.

Most of us go through our days on autopilot, we aren’t really living, we simply exist. For most of us, we can’t wait for Friday to get here, and then we spend our weekends wishing Monday would delay coming.
 
For others, they rush around pressing time, they simply cannot wait for the next hour to get here, but life is way too short to rush. Life goes by in the blink of an eye and before they know it, they are looking back, wondering what happened to life. What’s worse, pushing time has sealed their fate, where has it taken them, how did they get there so fast, what did rushing buy them. 
 
Today, I choose to slow down and enjoy life.Despite all the illnesses and diseases that I have, I still have presence of mind. I can still live my life, I can still be thankful, I can still enjoy the simple pleasures even if life has dealt me a bad hand. Those things that I truly live for, God, family, friends, community, and even contact with people like you, it is those things that will pull me through the hard times. Though some may not agree, I am blessed and have been blessed beyond measure. Just because I am ill, that will not steal my joy or the memories of what God has done for me and my family.
Here is what I propose; today, right now, slow down, take some time to live your life, enjoy the cool weather, have a picnic with your kids, have some friends over for a BBQ, hang out after dark and see how clear the stars are in the winter. Be thankful for the blessings that you have, be thankful for the blessings of the past and don’t worry about the things that you don’t have or the things you did not do. Don’t let life pass you by and don’t just simply exist, life is too short for that. Live your life to the best of your ability.