Happy Friday! 😁
This song seemed appropriate for my mood today. Enjoy.
When you are suffering it’s easy to slip into a state of hopelessness.
I live with chronic illness, my major organs are being attacked one of them is my heart, that means unless God heals me, I am not going to get any better. That also means, each day I have to be at peace with where I am at today, at this very moment. You can be angry about the past or your present right now, that’s entirely up to you. I tend not to give the power back over to the people or my illness that have already ruined things once.
The way I see it is; that I can live life one of two ways;
One; I was born into an unfair world, I suffered and I didn’t deserve how I got treated. I get knocked down too much and I don’t think life is fair so I am not going to even try. Life just sucks…
Two; I can use my circumstances and become stronger because of them. Every time life knocks me down, I get back up again using it as a spring-board. I focus on the good things in life and enjoy every moment in life that I do have.
I choose to live my life exactly like the second choice. I have no time for negativity in my mind because my time is so precious and limited.
I refuse to allow myself to think about how unfair my illness is. I know the consequences in the end, but I do not dwell on them. I am making my life worthwhile anyway though, no matter the trials.
Make your life count for something no matter what is going on in your life. If you are sick, count your blessings still.
I would rather live out the rest of my days being grateful for all the things I do have, rather than be upset, live in regret, waste precious time, for the things I didn’t do or don’t have.
This is my best friend and her perspective. When you have chronic illness, it’s hard to keep friends close because you constantly have to cancel plans and she does get that from me. I have tried my best to educate everyone in my life what Lupus is. I believe that has helped my relationships.
the little sleep I have had, working over 12 hours a day, going out 10 days straight. I Love you Tabitha.
Living with many Autoimmune Diseases is difficult enough. I have to keep on living a life, being a mother and a wife. I have to deal with my pain and I have to keep a handle on my emotions.
Over the next few days I will share some of my closest family and friends writings on how my illness affects them. I asked each of them to write how my illness affects them. The first one will be from my Father, the second one will be from my 14 year old daughter and I will continue for a few days with a few more people.
The reason I am doing this is because I want to bring awareness that our families and friends are deeply affected.
When we are physically hurting, they are emotionally hurting for us. Sometimes it’s hard to express that you love someone when it hurts so bad.
See previous post for letters from other family.
Let’s get real for a minute.
I think at times I downplay the seriousness of my autoimmune diseases and I don’t allow others in on the reality of my story.
My major organs are being attacked. I have heart blockages in my right bundle branch and I have the beginnings of kidney issues due to lupus. My digestive system doesn’t work as at it should, for my digestive system to break down foods it takes three times as long as a normal system.
I have over ten autoimmune diseases all of them have symptoms of their own. Lupus, Mixed Connective Tissue Disease, Lupus Nuephritis, Gastroparesis Nuerocardiogenic syncope,Sjogens, Autonomic dysfuction, Esophageal dysfuction, Arthritis, Antiphospholipid Syndrome, Autoimmune dysautonomia, Raynaud’s phenomenon, Myositis, chronic pain syndrome, and fibromyalgia. I am sure I have forgotten to list something because I also suffer from short term memory loss.