What is autoimmune disease to me?

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What is autoimmune disease? The medical definition is as follows; An illness that occurs when the body tissues are attacked by its own immune system. 

However, I have my own thoughts on what autoimmune disease means to me.

For me it’s not knowing what comes next. My good days are a normal person’s worst day. It’s the daily renewing of my mind to fight against depression, aggravation, and anger. It’s a daily awareness of how I feel, things I do, and how much I do.  It’s a daily fight for my life. 

 

Chronic illness is more than just a disease that makes my body hurt and an illness that won’t ever go away. It’s mentally draining, it attacks me to my core. Some of my biggest fears in life have had to be confronted in order to survive this illness. There isn’t room for wasting precious energy on things that I can’t control.

Facing a chronic illness is not easy, it’s scary and full of unknowns and unanswered questions. It can be lonely at times, even if you do have a full circle of supporters. I often see that other people say that no one understands them, and that is right! No one can possibly understand what you are going through except for yourself. It is your journey. However, we can’t get caught up in how much others do or do not understand what we are going through when we really can’t fully understand it ourselves. 

If you are a caretaker of someone with Autoimmune disease, the biggest gift you can give to your loved one is to say I believe you and listen. Understand that this illness is beyond what you can see, physically and psychologically. 

If you are one of my fellow spoonies, find a support system of others that you can gather information from and that can relate. If you need a support buddy, message me!

What is autoimmune disease to you? 

 

 

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Hope.

 

While the entire world is recovering from celebrating the start of a New Year, those of us who have an illness are most likely inside today, still recovering from last month’s holidays.

Today, reflect on how far you have come. You made it!! Know that you are strong, courageous, and you are a winner.

As long as we are in this together, there is always hope!

Take time to celebrate the small victories.

 

 

Monday morning pick me up. ( Good News!)

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Good News!
Luke 2: 10-11
“And the angel said to them, “Fear not, for behold, I bring you good news of great joy that will be for all the people. For unto you is born this day in the city of David a Savior, who is Christ the Lord.”
I have good news for you today. Today, we celebrate the birth of the Savior but that is just the beginning, this Savior is available to you and me every day. He has the gift of life, He has the power to defend, He is the one that holds our hand and sees us through every situation and predicament that we face today. He will comfort when we are sad, He will rejoice with us when we rejoice. He is the perfect gift, the perfect companion, a perfect Savior.

Merry Christmas!

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I wanted to take the time to wish all of my followers, readers, and anyone that sees my posts a Merry Christmas! 

My fellow Spoonies: remember to conserve your spoons,( energy) , do more sitting than doing, take advantage of all the family in your house this year and allow them to help. Your body will thank you on Tuesday! 

An encouraging letter to everyone who has Autoimmune disease.

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For those in the world who suffer with the debilitating disease such as Lupus, I pray for strength, for mercy, for healing. Having someone so close to me that suffers with this disease is not easy. Day after day, she suffers what seems to be alone, although I know she is never alone, God is with her, I believe in her, and I pray for her continually.  This disease has been harder than so many diseases because you can’t see the effects of this disease, she looks like the person I have known for almost nine years, but silently she suffers immensely. So, I stand by her, I listen, I pray and I try to encourage her every day.
For the community of those who are suffering with Lupus and Connective Tissue Disorder, I pray for a cure, I pray for God’s healing and I want to say to you, I stand in the gap with you. I pray that the people in your life will not show pity but strength, love and encouragement. I pray that your spouses will get a clue and be supportive, understand what you are going through, be caring and always be a shoulder to lean on. I pray that your children will be a helping hand, and that they will inspire you and take some of the weight off your shoulders by helping out the best they possibly can.
I offer this word of encouragement to so many that suffer with these autoimmune diseases, stand with each other, encourage one another. Amos 3: 3 in the Bible says, “Can two people walk together without agreeing on a direction? Coming together and supporting one another and offer sound advice is a key component of healing. If you have found some practical things that have helped you, share it. If you have learned a few things from reading and studying these diseases that will help someone else spread the wealth. If your doctor has been successful in helping in any way, let people know. There is strength in numbers. Lastly, “God has not given us the spirit of fear but of power, love and a sound mind.” (2 Timothy 1: 7 NKJV). Power to rise above, love is the strongest medicine, and a sound mind is for those dark hours when things seem hopeless or when someone else needs a word to keep them going. Proverbs 16: 24 says, “Gracious words are like a honeycomb, sweetness to the soul and health to the body.”
Blessings,
Pastor Johnie

 

Short encourgement for today.

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#health #chronicillness # remainstrong

Autopilot.

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Most of us go through our days on autopilot, we aren’t really living, we simply exist. For most of us, we can’t wait for Friday to get here, and then we spend our weekends wishing Monday would delay coming.
 
For others, they rush around pressing time, they simply cannot wait for the next hour to get here, but life is way too short to rush. Life goes by in the blink of an eye and before they know it, they are looking back, wondering what happened to life. What’s worse, pushing time has sealed their fate, where has it taken them, how did they get there so fast, what did rushing buy them. 
 
Today, I choose to slow down and enjoy life.Despite all the illnesses and diseases that I have, I still have presence of mind. I can still live my life, I can still be thankful, I can still enjoy the simple pleasures even if life has dealt me a bad hand. Those things that I truly live for, God, family, friends, community, and even contact with people like you, it is those things that will pull me through the hard times. Though some may not agree, I am blessed and have been blessed beyond measure. Just because I am ill, that will not steal my joy or the memories of what God has done for me and my family.
Here is what I propose; today, right now, slow down, take some time to live your life, enjoy the cool weather, have a picnic with your kids, have some friends over for a BBQ, hang out after dark and see how clear the stars are in the winter. Be thankful for the blessings that you have, be thankful for the blessings of the past and don’t worry about the things that you don’t have or the things you did not do. Don’t let life pass you by and don’t just simply exist, life is too short for that. Live your life to the best of your ability.
 

Dis-Courage-Ment.

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It’s ok to not be ok…But not for long.

I am convinced, now more than ever, that my childhood prepared me for this battle of illnesses that, simply put, is trying to kill me physically as well as mentally. I have struggled with so many illnesses in the last three years, every time I go to the doctor it seems there is just more diagnosed illnesses on top of what I already have. It should be overwhelming for me and perhaps I should be sitting in a corner sucking my thumb, rocking back and forth, but I am actually at peace. I want to share how I am able to handle and process these things that have been happening to me. 

We all have feelings and that’s a really good thing because that enables us to love others and respect each other but our feelings can also be a very damaging thing as well.  For me my feelings either control my situation or I control my feelings and overcome my circumstances.
It is ok to feel worried or scared, but I have found that in order to control my feelings about bad news I have to consciously tell myself how long I am going to have negative feelings. 
I literally have to stop and think about how I feel about each situation. I cannot group all of my issues together as one big problem, that would be too much, I have to look at things in a smaller scale. I choose not to worry. I choose to keep in mind the some of my situations are overwhelming, but I also search for the best outcome. I try and stay in control of my feelings. 
 I have had to face many circumstances that have been out of my control. I have had to accept that’s it is ok to feel down and confused at times but only for a short period. I have to be responsible to bring myself back out of negativity and control my feelings about the circumstance that come my way. It’s ok to not be ok, as long as I don’t stay there for long. 

How to sharpen your listening skills.

Listening is an important skill to have but a lot of people do not really know how to listen effectively. I have learned over the years that the most valuable thing that I can offer to anybody is to simply be a good listener. If you think about it, a truly best friend is a great listener. Most of the time people are looking for friends who will listen without judging.
When talking about my illness to people I have find that I have run across people that simply do not listen. Although it comes from the right intentions, people will try to relate to my illness with something that they have had before and often will hand out unwanted and bad advice when all I really need is for them to listen. We all have our own story, no one really knows how you and I feel, they can relate, but they do not know how we feel. We all handle our trials, troubles and illnesses differently, we are all unique, our internal make up is different, our feelings are our feelings. Try to never say, “I know how you feel.”
Here are some great ways to begin sharpening your skills on listening to others. 
1. Allow others to say what they are going to say. Let them tell their story, an opportunity will come at some time in the relationship for you to tell your story in relation to their story.
2. Stay silent!
3. Bank information.
4. Be open and receptive.  nod, smile, make occasional eye contact, act like you care.
5. Only give advice if the person asks for it and keep the advice short and to the point.
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